Changes are coming

We start (well ..continue) our Clonazepam wean tomorrow. Very excited and nervous for that. In the meantime we haven't heard back from the keto team about changing Oliver's diet and he's doing fairly well right now that I don't really want to change it yet. Would rather wait at least one more week while we start dropping the Clonazepam. We also need to get Oliver back to having his daily vitamins and supplements. We stopped while he was sick because they made him gag and throw up. We need to re-introduce them but I also want to wait at least a week for that as well. I read online today that Oliver's calcium supplement (that we were told to use by the dietitian) has glycerin and maltodextrin and both can be bad for kids on Keto. Argh! So I'm really trying to figure out the absolute best supplements that he can take without triggering seizures. Without them he might have some health issues and we are trying to keep him as healthy as possible.

This is a great article in the NY Times about the keto diet, I suggest giving it a good read when you have a chance:

Epilepsy's Big Fat Miracle

I had a small breakdown this morning when I arrived at the daycare. Today and tomorrow are picture days for the kids. Tobin and the older children have theirs tomorrow. Today was babies, infants and young toddlers. We opted out of the photo package for Oliver because he is unable to sit on his own for the photos. We also can't guarantee he'd be awake for the photos and we all know he's not great at smiling or looking at the camera. So why spend $33 on crappy photos that remind us just how far behind he is. While I think it's the best decision I still felt my heart drop when I walked in this morning and saw a little girl , the same age as Oliver, sitting and smiling at the camera saying "cheeeeeeeeee!!!". Luckily I drove in to work today so I had a good 30 minutes to cry it out of my system before getting to the office. I know Oliver has lots of years to take school photos and it's very silly that a 13 month old needs school pictures anyway, but it's always something small and silly like this that makes me feel the worst.