Tuesday, December 14, 2010

Tis the Season of Weaning

We're on to the next phase of our Clonazepam wean as of Friday night. Oliver is now only taking a half a pill per day (1/4 pill am, 1/4 pill pm). 3 weeks and we drop the morning dose completely. 6 weeks and we'll be completely weaned. Then on to the Sabril. We can't wait!

Oliver is handling the decrease fairly well, which reinforces the idea that his body was used to the drug and it was no longer as effective for him. He is done with his 4th round of antibiotics since starting the diet, hurray! Even though they claim there are no carbs/starches in the pill, we always see decreased ketones and increased seizures when he's on them. Since being off the abx we have seen good ketones so we are hoping to keep him healthy for awhile.

Today he had his 4th seizure of the month, which is a bit disappointing as we are hoping to see fewer seizures as the months go by. But we're still glad they are less intense than before and generally end before the 5 minute mark which is huge for him.

Winter has hit us hard and fast this year and it's a bit of a challenge getting 3 people bundled up and warm to head out onto the icy back walk way to our frigid garage. I am very much looking forward to spring even though it's so far away!!

No comments:

Post a Comment