ENT, ERG, AFOs , OH MY!

Oliver had his one month checkup at the ENT. He had an audiology screening to do the hearing test. They were unable to get the thing working properly in his right ear but his left ear passed the newborn hearing test again. They couldn't do the other tests because he's not 7-8 months developmentally :(

They recommended we do an ABR (sedated hearing test that measures what the brain processes through the ears) if he is to be sedated for any reason, perhaps when he's closer to 2 if we do a repeat MRI. His ear tubes are in and look fabulous. His ears look very clean and healthy.

He had his 4th ERG today to check his retinal function as required by SHARE while on Vigabatrin. NO changes since the last ERG and everything looks NORMAL! :)

We are just about 5 weeks from being completely off the Vigab medication so we're hoping that was our last ERG (maybe we'll do one more in about 6 months just to make sure everything still looks good).

GI Issues still there though he has some really good days with minimal crying (maybe 10-15 min fits instead of 3 hour long ones). We started Prevacid for the reflux in the am, while continuing Zantac at night just today so we'll give that about a month and then move on to the motility meds as recommended by the GI doc (we go back to GI on May 3rd).

Oliver should be getting a Benik vest, AFOs for his ankles/feet/legs and a hip helper on April 8th. On April 14th we go in to get fitted for a stander.

We have our annual EI meeting tomorrow afternoon and I will be asking again when our vision eval will happen (was requested a few months ago...apparently the place that does the evals is giving our EI coordinator the run around ), We also need to inquire about the bath chair and feeding chair we requested 4 months ago and ask for more services (would like speech and OT once per week and PT twice per week, along with feeding once per week). Wish us luck!