Oliver's birthday was a little rough. He had an hour long cranky crying session after his morning nap. I'm not sure if he had a mild seizure that we didn't see/hear before the crying started. I am trying to figure out if these crying sessions are due to something like reflux or gas or teeth or if it's post -seizure stuff. Not really sure but I decided to just write down everytime it happens and if it's frequent enough, maybe we'll get an idea on his next EEG if he is having mild seizures that we don't see. I hope it's something fixable like reflux or teeth. He has had a bad cold and does not want to eat or drink this weekend so it's been rough. Yesterday he scared us a bit because he slept a lot and didn't get enough fluids. We did get him to take some pedialyte during the night and this morning but then found out we shouldn't give too much while on the diet so we're going to try and get water into him over the next few days. Hopefully he will start eating better soon.
He did love the pumpkin cheesecake I made him and he got some very lovely clothes. Hopefully his next birthday will be less sad and more fun!
We are going to try taking him to daycare a few days this week so they can start easing into the diet. Hopefully all will go well and they will make sure he gets his meals on time and eats and drinks enough. We have his 12 mth appt coming up on Thursday along with his 3 month check in with hematology. During the keto stay we found out his neutraphils were up over 2200 and he was not neutropenic. Hopefully that trend continues.
Tobin has been having a blast with his grandmas and his Papa and just got a nice new haircut to even out the big chunk he cut from his own head at school the other day. Basically just being a typical three year old and for that we are so grateful. Tonight we are going to try and get organized and plan some of Oliver's meals for the upcoming week and do a few things around the house that we didn't get done on Sunday.
Monday, October 4, 2010
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