Keto Kid

Oliver is officially a keto kid. He started the Ketogenic Diet on Monday. Within 3 days he was fully in ketosis and handled the initiation of the diet like a dream. He ate everything we fed him, drank all his bottles and didn't have any complications. We left the hospital last night and he promptly spiked a fever and then vomited up butter and cream all over Jason during evening meds. We got most of his medication in and then let him go to sleep and he seems to be feeling much better today.

The diet is interesting and I am already sick of butter and cream and I don't even have to eat the stuff. But if it works it will be amazing. We're going slowly and just using some very basic meals to start but we've been able to get through it without using the keto formula yet which is great since it's so expensive. We just have to make sure to work the supplements and vitamins into him and make sure he gets enough protein to grow!

We hear that we'll know within a few months if the diet is going to work for his seizures so we're hopeful. He had one last Friday and then an awful one this past Monday before going into the hospital. VERY intense and spasms were coming every 5 minutes for HOURS after the original cluster added. Thursday morning he had a very mild seizure with only about 5 spasms and a few minutes of shaking and then it was over. Whether it would have been like that without the diet, I'm not sure. But if the diet helped to reduce the intensity that quickly I'm amazed. I think we'll know within a month if we need to make diet adjustments and then we can talk about weaning his Clonazepam completely first and then getting rid of the Vigabatrin.