well it's springtime and the weather is starting to get better, which means we will be able to take the little guy out for some walks and he can start to enjoy being outside with his big brother. After several spasms last weekend the drs upped his nightly dose to 8mL(400 mg) to see if they could once again decrease the spasms. He remained seizure free for 3 whole days and they came back this morning with a vengeance, so now we are increasing the morning dose of to 8mL (400 mg) as well. Now he is offically at 100mg per kg of baby. The drs say that 100-200 mg per kg is the best range to be in to see seizure control so we still have a lot of room to increase as far as dosing goes. Hopefully we find the right dose soon. EEG on tuesday should tell us more, fingers crossed we'll see some improvement.
We have our first PT appt at a center tomorrow and I am so excited to start on that road. I will have to call our EI case worker and see if she can light a fire under the state PT/OT so that we can get that process started as well.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment