We have Oliver's EEG tomorrow, the followup to the first one that diagnosed his IS. I am hoping and praying that we see some improvement over last time. Oliver had clusters of spasms this morning and then has been having random spasms throughout the morning the past few hours. Prior to that we had 3 seizure free days! He had his first therapy appt on Friday and did pretty well. We are hoping that PT through Pathways will help while we're waiting on our EI eval for PT/OT through the state. Wish they could call and schedule it already, they are so slow!
The weekend was fun, we took Tobin to an Easter Egg hunt and he got his haircut, very exciting. Yesterday we went to the children's museum so he could play for a few hours while Jason and Papa Frank built his big boy bed and switched bedrooms. Oliver now has his very own room, and Tobin is in his new room in his new twin bed. Very exciting.
Our neuro wants to increase Oliver's dose to the full 500mg packet of Vigabatrin starting tonight. Hoping that will keep the seizures away for more than 3 days this time!
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