When I'm home with Oliver looking at how darn cute he is, I feel hopeful and optimistic. Then I get to the office and start worrying about all the what ifs and pondering the fact that the seizures keep coming despite increasing his dose every few days. I know that sometimes it takes awhile at the right dose before the seizures stop, but when will we ever find the right dose? we're almost at the max dose for his weight and this weird single spasms keep popping through.
3/31 - 8am
4/1 - 3:30am, 7am, 1:30pm.
Single spasms/seizures without any cluster activity. Does this mean he is having a different type of seizure now? is this an indicator of another problem? Is the Vigab not working anymore? I hate how this is all a crap shoot. We have to keep tinkering around to find the magic combination to stop the seizures without ever knowing if the seizures will actually STOP! I just want them to stop. and never come back.
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